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HoPE Storytelling Festival 1st – 31st March 2023
March 1, 2023 8:00 am – March 31, 2023 5:00 pm
The HoPE (Heads of Patient Experience) Storytelling Festival is back for a second year. Events will be held online throughout March. They look at different aspects of health through storytelling.
The events are listed below with the booking links. We especially recommend the event And I’ll Blow Your House Down on the 9th of March by carer Georgie Steele.
1. Cancer Alliances and Macmillan – 8 March 1 – 2.30 pm
Hear about the work undertaken on digital storytelling via NHS England cancer alliances and how they have been used to improve services. There will also be a session by Macmillan Cancer Care on their digital storytelling project which shares people’s experiences of cancer diagnosis and treatment.
2. And I’ll Blow Your House Down – 9 March 2 pm – 4.15 pm
A live performance of a unique and innovative show sharing the experiences of a family thrust into the health and care system after their two sons were both diagnosed with Duchenne Muscular Dystrophy. The story is told in parallel with the story of The Three Little Pigs and The Big Bad Wolf.
3. How mental health nurse educators can learn from the experience of patients, carers and staff – 20 March 12 pm – 1.30 pm
In a collaboration between the NHS England experience of care team, the NHS England north-west regional team, Cheshire and Wirral Partnership Trust and Liverpool John Moores University, a range of mental health digital stories have been developed.
The stories explore the lived experience of patients, carers and staff, look at the role of nursing and take on board the perspectives of mental health nurse educators. Come along and learn more about the impact and outcomes of digital stories.
4. Somali Elders and Dementia Care Mapping – 22 March 11 am – 12.30 pm
Find out more about work contributing towards the training of carers and enabling them to learn more about person-centred care.
Work with the Assistive Technologies Innovation Centre shows how innovative technology can shed light on the life of someone living with dementia. Retinal screen glasses given to Mr Omar, who lives with dementia alongside other Somali elders in Red Sea House, have led to a greater understanding of his condition and in turn, helped with dementia care mapping.
5. A peer-led digital patient storytelling model – 23 March 10.30 am – 12 pm
The patient and public engagement team at Royal Brompton and Harefield Hospitals recruited patients, staff, and volunteers to take part in digital storytelling training. At this session, you will meet this pioneering team who started as absolute beginners. Learn how recording a patient’s experience can be transformed into video stories that celebrate great care, can provide vital learnings, and highlight potential future improvements.
6. Bounce Back Boy – 24 March 11 am – 12.30 pm
Hear from Lynn Cawley, a campaigning Methodist Minister who adopted Josh, a boy with catastrophic injuries inflicted on him by his birth parents. Lynn explains how she was expected to be his palliative care consultant, nurse, and campaigner for compensation. Professional actor Joseph Daniel-Taylor performs the play and gives the voice to Josh – the voice that he never had.
7. Made by Mortals – 27 March 2 – 3.30 pm
Hear about a community partnership programme between Tameside and Glossop Integrated Care NHS Foundation Trust and Made By Mortals. The project used immersive audio case studies coproduced by patients, including the use of music, sound effects, and drama, together with an interactive workshop that challenged volunteers and staff at the hospital to take a walk in the patient’s shoes.
8. The Solent Story – 28 March 10.30 am – 12 pm
Join us for this session from Solent NHS Trust the Touch Network, a local community organisation passionate about the power of storytelling. They are working together to support people to unlock stories about difficult times. This helps the understanding of what is done well, and what needs to change to ensure people who use services have a positive experience of care.
9. The Library of Lived Experience for Mental Health – 30 March 12.30 – 2 pm
The Spectrum Centre at Lancaster University has explored the idea of a living library as a way to share mental health experiences. In a living library, people, or ‘living books’ and are trained and supported to share their stories in one-to-one conversations with ‘readers’.
Over the course of a 12-month project, researchers lived experiences experts, and clinicians took part in 10 workshops to co-design an implementation guide for a Library of Lived Experience for Mental Health.